The basic tenet to let go of things, and to declutter one’s surroundings, is fundamental to an organising method coined KonMari. Within healthcare systems, there is the opportunity to streamline the number of available interventions, to eliminate or let go of less effective ones.Read More
Author: Teresa Finlay, Postdoctoral Researcher, IRIHS Research Group
DIA Europe, a member of the PARADIGM International Liaison Group, held its annual conference in Vienna in early February. I quickly forgot the sun glinting on the Danube and biting cold when the impressive programme commenced. Structured around seven tracks concerning medicines research and development, the overarching theme that prevailed at conference sessions was change, its realities, its impact and management. I was fortunate to be able to attend the conference courtesy of one of PARADIGM’s industry partners, MSD, and with the IMI-PARADIGM project in mind, I focused on sessions related to patient engagement.
The World Orphan Drug Congress took place in Barcelona, Spain, late last year. Several PARADIGM project partners attended the Congress, where they presented the project to the rare diseases community. Given the project’s emphasis on building patient engagement, particularly within vulnerable populations, PARADIGM’s presence was of paramount importance. On Rare Disease Day 2019, February 28, the PARADIGM members who attended the conference reflect on the role patient engagement has to play in this tight-knit but pro-active community.