PARADIGM at a glance
Meet the PARADIGM Consortium and get to know some interesting facts about them. PARADIGM’s mission is to provide a unique framework that enables structured, effective, meaningful, ethical, innovative, and sustainable patient engagement (PE) and demonstrates the ‘return on the engagement’ for all players.
Communications and External Engagement Plan
The Communications and Engagement plan lays down the map for PARADIGM communications activities throughout the project. It sets the guidelines for upcoming communication events, on stakeholders to reach, on the key messaging and the tools to use to reach them.
PARADIGM – 1st Open Patient Engagement Forum 2018
Patients Active in Research and Dialogues for an Improved Generation of Medicines (PARADIGM) had its first Open Patient Engagement Forum on the 10th of April in Brussels co-organised by PARADIGM, PFMD and EUPATI. The forum had four workshops focusing on prioritisation of the PARADIGM survey topics, building the PARADIGM story, assessing the value of patient engagement and utilising the survey to identify key stakeholders and most suited methodologies for the project. Follow the link for a short report on the events of the day: https://bit.ly/2yjGr01
D1.1 Survey analysis report on stakeholder-specific preferences, needs and expectations
To understand the needs, expectations and preferences from the perspective of different stakeholders, Work Package 1 (WP1) co-created with other WPs an online survey. The survey received 372 English language responses and 169 responses from 13 other European languages during the June and July in 2018. In addition to the survey, between June and October 2018, four different face-to-face consultations were carried out to involve the following vulnerable/ underrepresented and specific stakeholder groups : people with dementia, children and young 3 persons and people with rare diseases, as well as Health Technology Assessment (HTA) bodies.
PARADIGM Work Package 1 Webinar – presentation
The Paradigm Work package 1 (WP1) webinar held on May 8 shared the output of the work done as a wrap up for the WP1. To recap, the objective of WP1 was to identify and understand the needs and expectations of relevant stakeholders in patient engagement, and based on those to create a set of criteria that can be used to categorise and prioritise expected patient engagement activities. Link to the video recording: https://youtu.be/kBoOluqxQ4c
PARADIGM Work Package 1 Webinar – recording
The Paradigm Work package 1 (WP1) webinar held on May 8 shared the output of the work done as a wrap up for the WP1. To recap, the objective of WP1 was to identify and understand the needs and expectations of relevant stakeholders in patient engagement, and based on those to create a set of criteria that can be used to categorise and prioritise expected patient engagement activities. Link to the presentation: https://bit.ly/2WiyjaZ
D1.2 Criteria to assess how patient engagement expectations are met
This report describes the work that was done as part of PARADIGM’s work package 1 (WP1), which aimed to identify and define stakeholders’ preferences, needs and expectations in patient engagement (PE) through an online survey and focus group consultations that were conducted in 2018. The objectives of this work were two-fold: firstly to prioritise those needs and expectations identified, and secondly, with the help of topic experts, turn those prioritised needs into a set of criteria for a good PE activity.
Why patient engagement takes a village: a report from Patient Engagement Open Forum
The importance of collaboration, alignment and why it takes a village to achieve meaningful patient engagement (PE) was the opening call to action at the recent Patient Engagement Open Forum – Delivering patient engagement beyond aspirations. Over 250 delegates participated in the two-day immersive event which took place in Brussels, Belgium on 18–19 September, 2019.
PARADIGM’s digital assets
The success of PARADIGM is closely linked to the dissemination and adoption of the outcomes of the project. PARADIGM aims at ensuring an extensive outreach to a broad set of stakeholders within the medicines development community at large. In order to do that a set of digital assets were developed.