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Medicines lifecycle is critical to fostering patient access to innovative therapeutic solutions, and delivering better health outcomes for patients.

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Why patient engagement takes a village: a report from Patient Engagement Open Forum

The importance of collaboration, alignment and why it takes a village to achieve meaningful patient engagement (PE) was the opening call to action at the recent Patient Engagement Open Forum – Delivering patient engagement beyond aspirations. Over 250 delegates participated in the two-day immersive event which took place in Brussels, Belgium on 18–19 September, 2019.

4 November, 2019

Minimum criteria for good patient engagement – two-pager (WP1)

Expectations for effective and meaningful patient engagement in three phases of the medicines development lifecycle.

19 August, 2019

D2.1 Short report of existing patient engagement practices and processes

High level overview of the analysis to date around existing PE practices and processes, combined with some of the already known gaps in PE based on anecdotal and experiential evidence

26 July, 2019

D1.2 Criteria to assess how patient engagement expectations are met

This report describes the work that was done as part of PARADIGM’s work package 1 (WP1), which aimed to identify and define stakeholders’ preferences, needs and expectations in patient engagement (PE) through an online survey and focus group consultations that were conducted in 2018. The objectives of this work were two-fold: firstly to prioritise those needs and expectations identified, and secondly, with the help of topic experts, turn those prioritised needs into a set of criteria for a good PE activity.

4 July, 2019

PARADIGM Work Package 1 Webinar – recording

The Paradigm Work package 1 (WP1) webinar held on May 8 shared the output of the work done as a wrap up for the WP1. To recap, the objective of WP1 was to identify and understand the needs and expectations of relevant stakeholders in patient engagement, and based on those to create a set of criteria that can be used to categorise and prioritise expected patient engagement activities. Link to the presentation: https://bit.ly/2WiyjaZ

23 May, 2019

PARADIGM Work Package 1 Webinar – presentation

The Paradigm Work package 1 (WP1) webinar held on May 8 shared the output of the work done as a wrap up for the WP1. To recap, the objective of WP1 was to identify and understand the needs and expectations of relevant stakeholders in patient engagement, and based on those to create a set of criteria that can be used to categorise and prioritise expected patient engagement activities. Link to the video recording: https://youtu.be/kBoOluqxQ4c

17 May, 2019

Report of the PARADIGM WP1 HTA Workshop on Early Dialogues held in London on 19th October 2018

HTAi and PARADIGM convened a workshop on the 19th October 2018 with HTA Agencies to discuss patient involvement in Early Dialogues.

18 March, 2019

Report of the Internal consultation on patient engagement sustainability

In June 2018, an internal consultation was organized by EURORDIS to explore with its members the different dimension of the sustainability of the patient engagement in medicines R&D.

18 March, 2019

Report for consultation with young persons: KidsBarcelona FSJD

Online survey may not be the most adequate method for understanding the views of some patient groups. Some patients may have some specific needs that have to be considered and addressed.

18 March, 2019