Latest resource
Main deliverables
D5.4 Report on Interim Patient Engagement Open Forum
Main deliverable
D6.5 Patient Engagement Sustainability Roadmap
THE PARADIGM GAP ANALYSIS
D1.2 Criteria to assess how patient engagement expectations are met
D1.1 Survey analysis report on stakeholder-specific preferences, needs and expectations
Communications and External Engagement Plan
PARADIGM’s digital assets
Report on the first open Patient Engagement Forum
D5.3 Digital assets including website
WP5 – Dissemination and engagement
D5.2 Communications and External Engagement Plan
WP5 – Dissemination and engagement
D5.1 Report on the first open Patient Engagement Forum
WP5 – Dissemination and engagement
D4.1 Recommendations on the required capabilities for patient engagement
Patients Active in Research and Dialogues for an Improved Generation of Medicines. WP4 Co-designed recommendations and resources for patient engagement
D3.1 Reviewing of existing methods for monitoring and evaluation patient engagement
Patients Active in Research and Dialogues for an Improved Generation of Medicines. WP3 – Development of metrics for monitoring and evaluation
Why patient engagement takes a village: a report from Patient Engagement Open Forum
The importance of collaboration, alignment and why it takes a village to achieve meaningful patient engagement (PE) was the opening call to action at the recent Patient Engagement Open Forum – Delivering patient engagement beyond aspirations. Over 250 delegates participated in the two-day immersive event which took place in Brussels, Belgium on 18–19 September, 2019.
Minimum criteria for good patient engagement – two-pager (WP1)
Expectations for effective and meaningful patient engagement in three phases of the medicines development lifecycle.
D1.2 Criteria to assess how patient engagement expectations are met
This report describes the work that was done as part of PARADIGM’s work package 1 (WP1), which aimed to identify and define stakeholders’ preferences, needs and expectations in patient engagement (PE) through an online survey and focus group consultations that were conducted in 2018. The objectives of this work were two-fold: firstly to prioritise those needs and expectations identified, and secondly, with the help of topic experts, turn those prioritised needs into a set of criteria for a good PE activity.
PARADIGM Work Package 1 Webinar – recording
The Paradigm Work package 1 (WP1) webinar held on May 8 shared the output of the work done as a wrap up for the WP1. To recap, the objective of WP1 was to identify and understand the needs and expectations of relevant stakeholders in patient engagement, and based on those to create a set of criteria that can be used to categorise and prioritise expected patient engagement activities. Link to the presentation: https://bit.ly/2WiyjaZ
